english / persuasive.mdon commit [english] finish oral ppt refs & script alterations (7772c83)
   1# My Health Record
   2
   3## Background info
   4- federal government
   5- digital copy of records
   6- stored 30 years after death
   7- not clinically reliable
   8- existed since July 2012 (many technical failures)
   9- purpose of records does not change
  10- helps pharmacists and non-treating health professionals
  11
  12### Statistics
  13- 6 million consumers registered (54% F, 46% M)
  14- 14 thousand healthcare providers registered
  15- 8 million documents uploaded
  16- 24 million prescriptions uploaded
  17
  18
  19
  20
  21**Benefits**
  22
  23- data use for research (with consent)
  24- better communication between professionals
  25- ownership and access to information (privacy rights)
  26
  27**Risks**
  28
  29- reidentification
  30- inclusion of genomic data
  31- - system can be modified when this is approaching
  32- innacuracy of data (not clinically reliable)
  33- - not the only source of information
  34- - MHR is not "removing" data
  35- - lack of technical skills
  36- - - Blue Mountains trial - 15% -> 70% uptake with traininbg
  37- costâ„¢
  38- - cost is unclear (executive report, 2012)
  39
  40>**Contention:** MHR is well-intended but needs more work before it is implemented.
  41
  42## Paragraphs
  43
  44**Introduction** - introduce issue and recent developments  
  45
  46> MHR has good intentions and is long overdue but needs more work before it is fully implemented. This will ensure its safety, reliability and practical usefulness to patients and the industry in general.
  47
  48**Body 1** - inaccuracy - describe risks, consequences & projected developments
  49
  50- emergency access available - is inaccurate data bettter than no data?
  51- proper training will alleviate problems - Blue Mountains trial - 15% -> 70% uptake with proper training
  52- accuracy of information is not necessarily worse than with paper / non-centralised records
  53- less risk of data loss due to secure & trustworthy system (e.g. no risk of fire, burglary etc)
  54
  55**Body 2** - data collection for research - benefits, importance of accuracy  
  56
  57- option to opt out
  58- useful data for medical research is rare and hard to obtain
  59- system requires a more detailed ethical code and easy protocol for researchers to obtain data, e.g. data.gov.au
  60
  61**Body 3** - benefits for patients - efficiency & reliability, interdisciplinary contact & education
  62
  63-
  64
  65**Body 4 (?)** - confidentiality & privacy of information - discuss validity of concerns (accomodating tone), suggest possible solutions and timeframe for these modifications
  66
  67- concerns about confidentiality are greatly reduced with education (from executive report, 20122)
  68-
  69
  70**Conclusion** - summarise issues & draw conclusion that MHR needs more work before widespread implementation, with overall positive tone
  71
  72- "moving in the right direction" according to public (executive report, 2012)
  73
  74## Statement of Intention
  75
  76My opinion essay is written in a style intended for a newspaper or website. I took the approach of a casual but informative discussion around My Health Record, and I was careful to thoroughly cover the background of the issue in order to lead readers to a logically sound conclusion.
  77
  78The piece begins with a clear in
  79
  80
  81## Bibliography
  82<https://en.wikipedia.org/wiki/Electronic_health_record>  
  83<https://theconversation.com/using-my-health-record-data-for-research-could-save-lives-but-we-must-ensure-its-ethical-100757>  
  84<https://theconversation.com/my-health-record-the-case-for-opting-in-99850>  
  85<https://www.health.gov.au/internet/main/publishing.nsf/content/A892B3781E14E1B3CA25810C000BF7C6/%24File/Evaluation-of-the-My-Health-Record-Participation-Trials-Report.pdf>  
  86<https://www.legislation.gov.au/Details/C2015A00157>
  87<https://www.nbmphn.com.au/getattachment/5e802003-8972-40cc-ad68-9eda354d3406/attachment.aspx>  
  88<https://www.myhealthrecord.gov.au/sites/g/files/net5181/f/my_health_record_dashboard_-_30_september_2018.pdf?v=1538967834>