1# My Health Record 2 3## Background info 4- federal government 5- digital copy of records 6- stored 30 years after death 7- not clinically reliable 8- existed since July 2012 (many technical failures) 9- purpose of records does not change 10- helps pharmacists and non-treating health professionals 11 12### Statistics 13-6 million consumers registered (54% F, 46% M) 14-14 thousand healthcare providers registered 15-8 million documents uploaded 16-24 million prescriptions uploaded 17 18 19 20 21**Benefits** 22 23- data use for research (with consent) 24- better communication between professionals 25- ownership and access to information (privacy rights) 26 27**Risks** 28 29- reidentification 30- inclusion of genomic data 31- - system can be modified when this is approaching 32- innacuracy of data (not clinically reliable) 33- - not the only source of information 34- - MHR is not "removing" data 35- - lack of technical skills 36- - - Blue Mountains trial - 15% -> 70% uptake with traininbg 37- cost™ 38- - cost is unclear (executive report, 2012) 39 40>**Contention:** MHR is well-intended but needs more work before it is implemented. 41 42## Paragraphs 43 44**Introduction** - introduce issue and recent developments 45 46> MHR has good intentions and is long overdue but needs more work before it is fully implemented. This will ensure its safety, reliability and practical usefulness to patients and the industry in general. 47 48**Body 1** - inaccuracy - describe risks, consequences & projected developments 49 50- emergency access available - is inaccurate data bettter than no data? 51- proper training will alleviate problems - Blue Mountains trial - 15% -> 70% uptake with proper training 52- accuracy of information is not necessarily worse than with paper / non-centralised records 53- less risk of data loss due to secure & trustworthy system (e.g. no risk of fire, burglary etc) 54 55**Body 2** - data collection for research - benefits, importance of accuracy 56 57- option to opt out 58- useful data for medical research is rare and hard to obtain 59- system requires a more detailed ethical code and easy protocol for researchers to obtain data, e.g. data.gov.au 60 61**Body 3** - benefits for patients - efficiency & reliability, interdisciplinary contact & education 62 63- 64 65**Body 4 (?)** - confidentiality & privacy of information - discuss validity of concerns (accomodating tone), suggest possible solutions and timeframe for these modifications 66 67- concerns about confidentiality are greatly reduced with education (from executive report, 20122) 68- 69 70**Conclusion** - summarise issues & draw conclusion that MHR needs more work before widespread implementation, with overall positive tone 71 72- "moving in the right direction" according to public (executive report, 2012) 73 74## Statement of Intention 75 76My opinion essay is written in a style intended for a newspaper or website. I took the approach of a casual but informative discussion around My Health Record, and I was careful to thoroughly cover the background of the issue in order to lead readers to a logically sound conclusion. 77 78The piece begins with a clear in 79 80 81## Bibliography 82<https://en.wikipedia.org/wiki/Electronic_health_record> 83<https://theconversation.com/using-my-health-record-data-for-research-could-save-lives-but-we-must-ensure-its-ethical-100757> 84<https://theconversation.com/my-health-record-the-case-for-opting-in-99850> 85<https://www.health.gov.au/internet/main/publishing.nsf/content/A892B3781E14E1B3CA25810C000BF7C6/%24File/Evaluation-of-the-My-Health-Record-Participation-Trials-Report.pdf> 86<https://www.legislation.gov.au/Details/C2015A00157> 87<https://www.nbmphn.com.au/getattachment/5e802003-8972-40cc-ad68-9eda354d3406/attachment.aspx> 88<https://www.myhealthrecord.gov.au/sites/g/files/net5181/f/my_health_record_dashboard_-_30_september_2018.pdf?v=1538967834>